Apr
Hey,
Hope you get what i mean as i'm not a native english speaker. About me;
My right eye started glowing at night when i was about 3 months old and physicians diagnosed tumor and stated that i'd die in 9 months unless i had surgery, which my parents didn't have money to do. After few months, tumor stopped spreading, but caused my lens (or anterior chamber?) to become white, non transparent. I had surgery to remove non transparent lens when i was 8 years old. After that, my right eye started seeing colors (before that it could only see black and brown). Now my right eye has no lens, just a liquid produced by body if i'm not mistaken and I’ve lazy eye. My question is.. Am i still in danger about tumor, like would it spread to brain later on? How come i'm still alive altho i haven't had my right eye removed?
Thanks in advance.
Answer:
My intitial thought is that possibly you had a misdiagnosis. There are other problems that can cause the lens to become white. I would be very surprised that retinoblastoma would stop growing without removal of the eye. I would suggest another thought from doctors who have no previous knowledge of your condition.
Edit: Congenital cataracts can cause the same appearance you describe. When the surgeons removed the “tumor” did they send it off for a histological exam? This means they sent the tissue to a lab to have it examined microscopically to assure that it actually is retinoblastoma.